How to Develop a Palliative Care / Service Program
Finance & Management
- CAPC: The Center to Advance Palliative Care
A variety of resources to assist in designing, strengthening, maintaining and defending palliative care programs (registration needed) - Variation between End-of-Life Health Care Costs in Los Angeles and San Diego: Why are They so Different? Kaplan RM. J Palliat Med. 2011 Feb;14(2):215-20. PMID: 21314574 Open Access.
Medical care, particularly at the end of life, is significantly more expensive in Los Angeles (LA) (> US $43,000 in the last 2 years of life) than in San Diego (< US $29,000), yet quality measures tend to favor in San Diego. Non-emergent hospital admissions and inpatient care at the end of life are important contributors to the cost differences. There is little reason to believe that the greater spending for health care in LA results in better patient outcomes
Regulation
- CMS: Centers for Medicare & Medicaid Services
Information about the Medicare and Medicaid hospice benefit in the US - NHPCO: National Hospice & Palliative Care Organization
Legal and regulatory resources in the US - WHO: World Health Organization
Sub-Saharan Africa project on palliative care
Development
- Early Palliative Care for Patients with Metastatic Non-Small-Cell Lung Cancer. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. N Engl J Med. 2010 Aug 19;363(8):733-42. PMID: 20818875 Open Access.
Among patients with metastatic non-small-cell lung cancer, early palliative care led to significant improvements in both quality of life and mood. As compared with patients receiving standard care, patients receiving early palliative care had less aggressive care at the end of life but longer survival. - Clinical Practice Guideline for Quality Palliative Care (Jan 2009). (1.6 MB)
Most current information in palliative care from the National Consensus Project (Jan 2009).
May serve as 'blueprint' to build optimal palliative care practice, including up-to-date references. - EAPC: The European Association for Palliative Care
Reports on the development of palliative care in different European countries - ESMO: The European Society for Medical Oncology
Accreditation program for cancer centers with integrated palliative care services - FHSSA: Foundation for Hospices in Sub-Saharan Africa
Programs to support palliative care in Sub-Saharan Africa - Help the Hospices: Palliative Care Toolkit
Excellent Handbook for Palliative Care and Hospice Services, with an International focus. Developed by Help the Hospices.org. Will serve nurses, physicians, and other caregivers, including patients and families. Goes through ‘developing a program’ to ‘delivering services’ and evaluating outcomes. Highly recommended. - IAHPC: International Association for Hospice & Palliative Care
Programs on faculty development and teaching in developing countries - IAHPC: International Association for Hospice & Palliative Care
Guidelines for those considering starting a hospice/palliative care service - INCTR: The International Network for Cancer Treatment and Research
Description of the palliative care program in Nepal - IOELC: International Observatory on End of Life Care (2.1 MB)
A global mapping of palliative care development (2006) - IOELC: International Observatory on End of Life Care
Analyses of the state of palliative care in over 60 countries - NHPCO: National Hospice & Palliative Care Organization
Facts and statistics about hospice and palliative care - OSI: Open Society Foundations (99 KB)
The state of palliative care and HIV/AIDS in Latin America
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Page Last Modified: Tue Sep 13 2011