The Treat the Pain & Life before Death Projects focus on the global epidemic of untreated pain and the need for palliative care. Read more / Watch All the Videos
Produced by Mike Hill & Sue Collins, Moonshine Movies
Treat the Pain Life Before Death
About this Video
'HIV/AIDS Pain' highlights how painful HIV/AIDS can be. read more...close
Palliative care experts elaborate on the crisis that exists to deliver essential pain medicines to patients in need in Africa. Dr Natalya Dinat (South Africa), Dr Liz Gwyther (South Africa), Nurse Keletso Mmoledi (South Africa) and Nini (South Africa) provide notable quotes:
Dr Natalya Dinat (South Africa) explains; “We’ve found in the bigger AIDS meeting, and in the AIDS research agenda where the money is going to, that there’s very little interest in pain relief in HIV.”
We learn that in South Africa one in three adults have HIV, that’s over 5 million people who are HIV positive in that country alone.
Dr Liz Gwyther (South Africa) states; “Patients themselves think: ‘Well, I’m HIV positive, I sick, I will have pain’ and there’s that acceptance of pain so they don’t bring it up.”
We meet HIV/AIDS patient NIni (South Africa) who says that her pain alone landed her in hospital and threatened her life. “The pain was so unbearable.”
Palliative Care Nurse Keletso Mmoledi reveals that Nini’s pain has now been successfully controlled using antidepressants and opioids such as morphine.
Dr Natalya Dinat speaks of the consequences of untreated pain; “We know that first of all people can’t go to work or they take days off work. With HIV neuropathy, which is pain in the feet and happens long before people require antiretrovirals, people might find it difficult to walk, they might miss their clinic visits… They might not be able to get to the clinic to get their antiretrovirals which means they’re going to die. It’s as profound as that.”
“The medication – I think that is why I’m still alive,” reflects Nini. “Other people I know didn’t want to take the tablets… Now they’re no longer here. They’re gone.”
Call to Action
- Tell one or more HIV/AIDS or infectious disease physicians and nurses you know to watch this video
- Then ask them how they improve HIV/AIDS pain management in your community
- Share your experiences in the comments section below…
Supporting Resources
- Up to 60% of patients with HIV/AIDS experience moderate to severe pain
UNAIDS: Statistics by Regions and Countries - HIV/AIDS Pain and Palliative Care Resources
- A Comprehensive Guide for the Care of Persons with HIV Disease – Module 4: Palliative Care
- AETC National Resource Center, Palliative Care and HIV
- UNAIDS, AIDS: Palliative Care (300 KB)